bbc.com
Bradford 10k Run Honors Daughter Lost to Rare Epilepsy
Cheryl Murphy from Pudsey is running the Bradford 10k on Sunday with friends and family to raise awareness and funds for hemiplegia Hemiconvulsion syndrome, a rare epilepsy that caused her two-year-old daughter Edie's death in 2015, after an event which the family believe could not have been predicted.
- How has running helped the Murphy family cope with grief and raise awareness of hemiplegia Hemiconvulsion syndrome?
- This event marks a significant milestone in the Murphy family's fundraising, exceeding £35,000 since 2015. The family's running efforts, started as a way to cope with grief, has become a powerful symbol of Edie's memory and a method to raise awareness of this rare and often fatal epilepsy syndrome.
- What is the significance of Cheryl Murphy's Bradford 10k run in the context of her daughter's death and the family's fundraising?
- Ten years after her daughter Edie died from the rare hemiplegia Hemiconvulsion syndrome, Cheryl Murphy is running the Bradford 10k with nine friends and family. This follows her completion of the Manchester Marathon in April and is part of a decade-long fundraising effort exceeding £35,000 for children's charities.
- What are the potential long-term impacts of the Murphy family's fundraising and advocacy efforts on raising awareness and understanding of hemiplegia Hemiconvulsion syndrome?
- The Murphy family's dedication highlights a critical need for increased research and awareness surrounding hemiplegia Hemiconvulsion syndrome. Their efforts could pave the way for earlier diagnosis and potentially life-saving interventions in the future, impacting other families facing this devastating condition.
Cognitive Concepts
Framing Bias
The framing is largely empathetic and focuses on the family's grief and resilience in the face of tragedy. While this is understandable given the subject matter, it could be argued that the emphasis on fundraising and personal experience overshadows any broader discussion of the rare syndrome itself. The headline, if it existed, would play a key role in setting this tone.
Language Bias
The language used is largely neutral and compassionate. Terms like "poorly" and "a bit of a cold" could be considered slightly understated given the seriousness of the situation, but are not inherently biased.
Bias by Omission
The article focuses heavily on the emotional impact on the family and the fundraising efforts, but provides limited information on the specifics of hemiplegia Hemiconvulsion syndrome itself. While understandable given the emotional context, a brief mention of its prevalence or research advancements would provide a more complete picture. The lack of detail on the syndrome could unintentionally limit the reader's understanding of the larger health issue.
Sustainable Development Goals
The article highlights the family's fundraising efforts for children's hospitals and charities focused on epilepsy, directly contributing to improved healthcare and awareness for rare childhood illnesses. Their work raises awareness of hemiplegia Hemiconvulsion syndrome, a rare and often fatal condition, leading to better diagnosis and potentially improved treatment in the future. The running events also indirectly promote physical and mental well-being for the family in their coping process.