My Tiny Feed

torino.repubblica.it

Technology and Collaboration Improve Rare Disease Care in Piedmont

Piedmont, Italy addresses healthcare challenges for over 55,000 rare disease patients by leveraging technology and improving healthcare access and coordination.

Read original article in Italian

Italian

Italy

TechnologyHealthHealthcareItalyPolicyRare Diseases

Regione PiemonteAsl Città Di TorinoAsl 4Amici Del CuorePfizer

Federico RiboldiRoberto RavelloVittoria NalloGianna PenteneroAlberto AvettaClaudio Zanon

How many people in Piedmont are affected by rare diseases?: Over 55,000 people in Piedmont, Italy, suffer from rare diseases. The regional government is prioritizing improvements to healthcare, including technology to improve access and the doctor-patient relationship.
What legislative action is being taken to improve care for patients with rare diseases?: A motion to expand neonatal screenings is being considered, with support from both the ruling and opposition parties in the regional council. This aims to improve early detection of rare diseases.
What collaborative initiative is being launched to improve the lives of patients with rare diseases?: A collaborative table involving stakeholders, associations, and institutions, aims to translate policies into concrete actions for patients with rare diseases. Piedmont will be the pilot region for this initiative.
What are some of the challenges and considerations mentioned regarding healthcare access and affordability?: While decreased patient mobility to larger cities is noted, some patients use private healthcare. Improving alignment between healthcare and budget aspects is essential for providing comprehensive care.
What role does technology play in addressing the healthcare needs of patients with rare diseases in Piedmont?: Technological innovation is key to providing widespread care, especially in rural areas of Piedmont with limited healthcare access. Telemedicine will play a crucial role in bridging this gap.

Jan 22, 22:10

Neurodivergent Healthcare: Systemic Failures and Innovative Solutions

The healthcare system's failure to adequately serve neurodivergent individuals places a heavy burden on families, forcing many caregivers to quit their jobs to manage their children's care; however, organizations like the Institute for Exceptional Care (IEC) are developing innovative technological and systemic solutions to improve access and quality of care.

Jan 22, 01:08

Surge in Telehealth Advertising Raises Quality-of-Care Concerns

Telehealth companies dramatically increased their advertising spending in 2023 to \$111 million, emphasizing convenience and destigmatization of health issues but raising concerns about care quality due to impersonal interactions and inconsistent follow-up, prompting calls for regulatory oversight.

Jan 22, 13:11

Dutch Care Facility Improves Elderly Care Through Technological Innovation

TanteLouise, a West-Brabant care facility, uses technology like hip airbags (reducing hip fractures by 46%) and electronic bed sensors to improve elderly care and address staff shortages, highlighting a proactive, data-driven approach to innovation.

Jan 22, 22:10

Occupational Exoskeletons Reduce Healthcare Worker Injuries

Occupational exoskeletons are increasingly used in healthcare to prevent injuries among nurses and caregivers, addressing a \$6.2 billion annual cost from workplace injuries in the U.S. and reducing the high rates of nonfatal injuries in hospitals and care facilities.