Tag #Aag

What are the immediate consequences of the inadequate diagnosis and treatment of rare diseases like AAG, as exemplified by Annaliese Holland's case?

Annaliese Holland, 25, was diagnosed with autoimmune autonomic ganglionopathy (AAG), a rare and terminal neurological disorder, at 22. Her journey began with glandular fever at 11, leading to years of misdiagnosis and debilitating illness. Despite facing death and profound physical limitations, she has become an advocate for others with AAG, raising awareness and funds.