Tag #Friedreich's Ataxia

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bbc.com
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UK Drug Approval Delays Cause Anxiety for Patients

Mike Thomas, diagnosed with MND in 2022, is experiencing slowed deterioration thanks to tofersen via an early access program; however, the drug's uncertain NHS future and differing access across the UK (exemplified by Sara and David's situations with omaveloxolone) highlight challenges in the nation...

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