Tag #Healthcare Advocacy

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Italian Mother Campaigns for Nationwide Newborn Screening After Daughter's MLD Diagnosis

Giulia Ferrari's daughter, Gioia, was diagnosed with metachromatic leukodystrophy (MLD) in September 2024 after months of misdiagnosis. Giulia is now campaigning for nationwide newborn screening for MLD, supported by the Voa Voa association and singer Nek, as the existing gene therapy came too late ...

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