AI Finds Life-Saving Drug for Terminally Ill Patient
An AI identified adalimumab, a drug used for arthritis and Crohn's disease, as a life-saving treatment for a terminally ill patient with idiopathic multicentric Castleman's disease (iMCD), who is now in remission almost two years after entering hospice care.
AI Finds Life-Saving Drug for Terminally Ill Patient
An AI identified adalimumab, a drug used for arthritis and Crohn's disease, as a life-saving treatment for a terminally ill patient with idiopathic multicentric Castleman's disease (iMCD), who is now in remission almost two years after entering hospice care.
Progress
40% Bias Score
Parents Sell Home to Fund Gene Therapy Research for Daughter with Ultra-Rare Disease
Tallulah Moon, a toddler from Australia, was misdiagnosed with leukodystrophy but later diagnosed with the ultra-rare SPG56; her parents are spearheading a $5 million gene therapy research project to find a cure, selling their home to fund part of the endeavor.
Parents Sell Home to Fund Gene Therapy Research for Daughter with Ultra-Rare Disease
Tallulah Moon, a toddler from Australia, was misdiagnosed with leukodystrophy but later diagnosed with the ultra-rare SPG56; her parents are spearheading a $5 million gene therapy research project to find a cure, selling their home to fund part of the endeavor.
Progress
16% Bias Score
Novosibirsk Teen with Progeria Faces Treatment Hurdles Despite Social Media Success
Fifteen-year-old Anya Korchagina from Novosibirsk battles progeria, a rare disease causing premature aging, and faces challenges accessing experimental treatment in Russia after a femur fracture, yet maintains a positive outlook through her popular social media blog.
Novosibirsk Teen with Progeria Faces Treatment Hurdles Despite Social Media Success
Fifteen-year-old Anya Korchagina from Novosibirsk battles progeria, a rare disease causing premature aging, and faces challenges accessing experimental treatment in Russia after a femur fracture, yet maintains a positive outlook through her popular social media blog.
Progress
32% Bias Score
Gene Therapy Breakthrough for Duchenne Muscular Dystrophy
A gene therapy developed by Généthon shows remarkable success in treating Duchenne muscular dystrophy in a young boy, offering hope for future treatments. Further research is underway.
Gene Therapy Breakthrough for Duchenne Muscular Dystrophy
A gene therapy developed by Généthon shows remarkable success in treating Duchenne muscular dystrophy in a young boy, offering hope for future treatments. Further research is underway.
Progress
0% Bias Score
UK Boy's Near-Fatal Heart Condition Highlights Diagnostic Challenges
Eleven-year-old Trey Taylor from Milton Keynes, UK, developed multiple organ failure from suspected dilated cardiomyopathy after initial symptoms of stomach ache and chest pressure were misdiagnosed, highlighting urgent needs for quicker diagnosis of pediatric heart conditions and increased awarenes...
UK Boy's Near-Fatal Heart Condition Highlights Diagnostic Challenges
Eleven-year-old Trey Taylor from Milton Keynes, UK, developed multiple organ failure from suspected dilated cardiomyopathy after initial symptoms of stomach ache and chest pressure were misdiagnosed, highlighting urgent needs for quicker diagnosis of pediatric heart conditions and increased awarenes...
Progress
44% Bias Score
Teenage Photographer Dies, Family Launches Charity for Rare Cancer
Seventeen-year-old Liz Hatton, a talented photographer from Harrogate, UK, passed away on November 27th after battling desmoplastic small round cell tumor; her family now aims to establish a charity to fund research and support others facing this rare cancer.
Teenage Photographer Dies, Family Launches Charity for Rare Cancer
Seventeen-year-old Liz Hatton, a talented photographer from Harrogate, UK, passed away on November 27th after battling desmoplastic small round cell tumor; her family now aims to establish a charity to fund research and support others facing this rare cancer.
Progress
20% Bias Score
Récidive de cancer résistante pour Emilie Dequenne
L'actrice Emilie Dequenne, atteinte d'un corticosurrénalome, un cancer rare des surrénales, annonce une récidive résistante au traitement, interrompant sa carrière malgré une prise en charge spécialisée dans un centre labellisé.
Récidive de cancer résistante pour Emilie Dequenne
L'actrice Emilie Dequenne, atteinte d'un corticosurrénalome, un cancer rare des surrénales, annonce une récidive résistante au traitement, interrompant sa carrière malgré une prise en charge spécialisée dans un centre labellisé.
Progress
16% Bias Score
Woman Diagnosed with Sexsomnia
A 50-year-old woman is diagnosed with sexsomnia, a rare sleep disorder causing her to engage in sexual activity while asleep. She takes precautions when away from home and has an understanding with her husband regarding the condition.
Woman Diagnosed with Sexsomnia
A 50-year-old woman is diagnosed with sexsomnia, a rare sleep disorder causing her to engage in sexual activity while asleep. She takes precautions when away from home and has an understanding with her husband regarding the condition.
Progress
0% Bias Score