Showing 25 to 36 of 41 results
Rare Cancer Diagnosis Highlights Healthcare Access Challenges
Abeeku Lewis, a 30-year-old from Halifax, was diagnosed with sarcoma, a rare and aggressive cancer, after initially misinterpreting symptoms as a sports injury; the delay led to the cancer spreading to his brain and trachea, necessitating private treatment options due to NHS limitations.
Rare Cancer Diagnosis Highlights Healthcare Access Challenges
Abeeku Lewis, a 30-year-old from Halifax, was diagnosed with sarcoma, a rare and aggressive cancer, after initially misinterpreting symptoms as a sports injury; the delay led to the cancer spreading to his brain and trachea, necessitating private treatment options due to NHS limitations.
Progress
32% Bias Score
Father of Six Given Six Months to Live Due to Aggressive Undiagnosed Skin Disease
A father of six from Spokane, Washington, has been given six months to live after developing an aggressive, unidentified skin disease that has spread rapidly across his body, resulting in a significant financial burden due to medical expenses not covered by insurance.
Father of Six Given Six Months to Live Due to Aggressive Undiagnosed Skin Disease
A father of six from Spokane, Washington, has been given six months to live after developing an aggressive, unidentified skin disease that has spread rapidly across his body, resulting in a significant financial burden due to medical expenses not covered by insurance.
Progress
44% Bias Score
Italian Mother Campaigns for Nationwide Newborn Screening After Daughter's MLD Diagnosis
Giulia Ferrari's daughter, Gioia, was diagnosed with metachromatic leukodystrophy (MLD) in September 2024 after months of misdiagnosis. Giulia is now campaigning for nationwide newborn screening for MLD, supported by the Voa Voa association and singer Nek, as the existing gene therapy came too late ...
Italian Mother Campaigns for Nationwide Newborn Screening After Daughter's MLD Diagnosis
Giulia Ferrari's daughter, Gioia, was diagnosed with metachromatic leukodystrophy (MLD) in September 2024 after months of misdiagnosis. Giulia is now campaigning for nationwide newborn screening for MLD, supported by the Voa Voa association and singer Nek, as the existing gene therapy came too late ...
Progress
48% Bias Score
Russian Teen Recovers from Rare Brain Disease After Timely Diagnosis and Treatment
A 14-year-old girl in Samara, Russia, was successfully treated for Balo concentric sclerosis, a rare disease causing brain tissue damage, after a timely diagnosis aided by telemedicine consultations with specialists in Moscow, resulting in significant recovery of speech and improved gait.
Russian Teen Recovers from Rare Brain Disease After Timely Diagnosis and Treatment
A 14-year-old girl in Samara, Russia, was successfully treated for Balo concentric sclerosis, a rare disease causing brain tissue damage, after a timely diagnosis aided by telemedicine consultations with specialists in Moscow, resulting in significant recovery of speech and improved gait.
Progress
32% Bias Score
Successful Lung Transplant Saves Toddler After Year-Long Battle with Autoimmune Disease
After a year-long battle with a severe autoimmune disease that damaged his lungs, 3-year-old Fabio received a successful lung transplant at Vall d'Hebron Hospital in Barcelona, highlighting the complexities of pediatric organ transplantation.
Successful Lung Transplant Saves Toddler After Year-Long Battle with Autoimmune Disease
After a year-long battle with a severe autoimmune disease that damaged his lungs, 3-year-old Fabio received a successful lung transplant at Vall d'Hebron Hospital in Barcelona, highlighting the complexities of pediatric organ transplantation.
Progress
24% Bias Score
UK Boy's Near-Fatal Heart Condition Highlights Diagnostic Challenges
Eleven-year-old Trey Taylor from Milton Keynes, UK, developed multiple organ failure from suspected dilated cardiomyopathy after initial symptoms of stomach ache and chest pressure were misdiagnosed, highlighting urgent needs for quicker diagnosis of pediatric heart conditions and increased awarenes...
UK Boy's Near-Fatal Heart Condition Highlights Diagnostic Challenges
Eleven-year-old Trey Taylor from Milton Keynes, UK, developed multiple organ failure from suspected dilated cardiomyopathy after initial symptoms of stomach ache and chest pressure were misdiagnosed, highlighting urgent needs for quicker diagnosis of pediatric heart conditions and increased awarenes...
Progress
44% Bias Score
Misdiagnosed Hangover Reveals Life-Threatening Heart Condition
A 33-year-old Chinese man's facial swelling after drinking alcohol was misdiagnosed for three months, ultimately revealing a life-threatening ruptured sinus of Valsalva aneurysm (RSOVA) that caused heart failure, highlighting diagnostic challenges for this rare condition.
Misdiagnosed Hangover Reveals Life-Threatening Heart Condition
A 33-year-old Chinese man's facial swelling after drinking alcohol was misdiagnosed for three months, ultimately revealing a life-threatening ruptured sinus of Valsalva aneurysm (RSOVA) that caused heart failure, highlighting diagnostic challenges for this rare condition.
Progress
32% Bias Score
Restored Steam Locomotive Honors Boy, Raises Funds for Children's Hospice
The restored steam locomotive "Lord Oliver Brown", painted in its namesake's favorite color, made its maiden voyage on what would have been Oliver's 17th birthday, raising awareness and funds for Children's Hospice South West, which cared for Oliver before he died aged 11 from Myelodysplastic Syndro...
Restored Steam Locomotive Honors Boy, Raises Funds for Children's Hospice
The restored steam locomotive "Lord Oliver Brown", painted in its namesake's favorite color, made its maiden voyage on what would have been Oliver's 17th birthday, raising awareness and funds for Children's Hospice South West, which cared for Oliver before he died aged 11 from Myelodysplastic Syndro...
Progress
20% Bias Score
Rare Genetic Disorder Tango2 Deficiency Identified, Offering Hope for Treatment
Seven-year-old Nora's debilitating symptoms, initially misdiagnosed, were identified as Tango2 Deficiency Disorder (TDD) through genome sequencing, highlighting the importance of genetic research in rare diseases and offering hope for improved treatment.
Rare Genetic Disorder Tango2 Deficiency Identified, Offering Hope for Treatment
Seven-year-old Nora's debilitating symptoms, initially misdiagnosed, were identified as Tango2 Deficiency Disorder (TDD) through genome sequencing, highlighting the importance of genetic research in rare diseases and offering hope for improved treatment.
Progress
28% Bias Score
Ultra-Rare Brain Tumor Threatens Teen's Life
A 16-year-old Scottish girl, Alex Arkell, faced a life-threatening situation due to an ultra-rare FSH-secreting pituitary adenoma causing ovarian cysts, requiring urgent surgery and resulting in PTSD and repeated tumor recurrences.
Ultra-Rare Brain Tumor Threatens Teen's Life
A 16-year-old Scottish girl, Alex Arkell, faced a life-threatening situation due to an ultra-rare FSH-secreting pituitary adenoma causing ovarian cysts, requiring urgent surgery and resulting in PTSD and repeated tumor recurrences.
Progress
32% Bias Score
AI Finds Life-Saving Drug for Terminally Ill Patient
An AI identified adalimumab, a drug used for arthritis and Crohn's disease, as a life-saving treatment for a terminally ill patient with idiopathic multicentric Castleman's disease (iMCD), who is now in remission almost two years after entering hospice care.
AI Finds Life-Saving Drug for Terminally Ill Patient
An AI identified adalimumab, a drug used for arthritis and Crohn's disease, as a life-saving treatment for a terminally ill patient with idiopathic multicentric Castleman's disease (iMCD), who is now in remission almost two years after entering hospice care.
Progress
40% Bias Score
Parents Sell Home to Fund Gene Therapy Research for Daughter with Ultra-Rare Disease
Tallulah Moon, a toddler from Australia, was misdiagnosed with leukodystrophy but later diagnosed with the ultra-rare SPG56; her parents are spearheading a $5 million gene therapy research project to find a cure, selling their home to fund part of the endeavor.
Parents Sell Home to Fund Gene Therapy Research for Daughter with Ultra-Rare Disease
Tallulah Moon, a toddler from Australia, was misdiagnosed with leukodystrophy but later diagnosed with the ultra-rare SPG56; her parents are spearheading a $5 million gene therapy research project to find a cure, selling their home to fund part of the endeavor.
Progress
16% Bias Score
Showing 25 to 36 of 41 results