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Four-Year-Old Dies Despite Extensive Fundraising for SMA Treatment
Four-year-old Alisa Kochetkova from St. Petersburg, Russia, died on April 27th from spinal muscular atrophy (SMA) type 1, despite her family's three-year effort to raise 155 million rubles for Zolgensma treatment and ongoing care including Spinraza.
Four-Year-Old Dies Despite Extensive Fundraising for SMA Treatment
Four-year-old Alisa Kochetkova from St. Petersburg, Russia, died on April 27th from spinal muscular atrophy (SMA) type 1, despite her family's three-year effort to raise 155 million rubles for Zolgensma treatment and ongoing care including Spinraza.
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