Tag #Motor Neurone Disease

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Blood Test Predicts Motor Neurone Disease a Decade Early

A new blood test can identify specific proteins indicating Amyotrophic Lateral Sclerosis (ALS), the most common form of motor neurone disease, up to 10 years before symptom onset, according to a Johns Hopkins University study published in Nature Medicine.

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Mother with MND Dies After Choosing Voluntary Death

Emma Bray, a 42-year-old mother with motor neurone disease, died this summer after choosing voluntary stopping of eating and drinking (VSED) to protect her children from witnessing her painful death. She advocated for assisted dying, believing it would prevent loved ones from experiencing anticipato...

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Study Links Psychiatric Drugs to Increased Motor Neurone Disease Risk

A Scandinavian study of 1,057 MND patients found that antidepressants, anxiolytics, sleeping pills, and sedatives increased the risk of developing MND by 21-34%, potentially impacting 8.6 million UK antidepressant users; however, some scientists suggest this link may be due to mental health patients...

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ALS Diagnosis Highlighted by Early-Symptom Videos

Eric Brunner, a 38-year-old artist from Philadelphia, was diagnosed with ALS in 2020 after experiencing subtle initial symptoms, such as loss of coordination and hand weakness, as shown in videos shared by his wife on social media. The videos, watched millions of times, highlight the difficulty of e...

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Drooling and Swallowing Difficulties: Early Warning Signs of Motor Neurone Disease

Experts highlight difficulty swallowing, excessive saliva, or drooling as potential early signs of motor neurone disease (MND), a progressive neurodegenerative condition affecting the brain and nerves, impacting movement, eating, and breathing; a 2021 study found 31% of 900 Scottish MND patients exp...

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smh.com.au
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Daniher's Fight Against MND Raises $115 Million, Inspires Nation

Neale Daniher, a 63-year-old Australian of the Year, has publicly battled motor neurone disease (MND) since his 2013 diagnosis, raising $115 million for research and inspiring countless Australians through his courage and determination.

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bbc.com
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MND Teen's Family Faces Housing Crisis

The family of 14-year-old Kyle Sieniawski, diagnosed with MND in January, is desperately seeking suitable housing after their home was deemed inadaptable by Rhondda Cynon Taf council, forcing them to live at Noah's Ark Children's Hospital for nine months due to a lack of accessible housing options.

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Death of David "Syd" Lawrence MBE: Cricketer's legacy mourned

David "Syd" Lawrence MBE, the first British-born Black cricketer to represent England, died at age 61 after battling motor neurone disease; his death prompted tributes from colleagues and friends highlighting his legacy both on and off the field.

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Over 10,000 Run Rob Burrow Leeds Marathon, Raising Thousands for MND Research

The third annual Rob Burrow Leeds Marathon, held in memory of the late rugby player, saw over 10,000 runners raise money for Motor Neurone Disease research, with participants including a man diagnosed with PLS and a councillor who ran the London Marathon beforehand.

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Australian Murray River Towns Show Sevenfold Increase in Motor Neurone Disease

Unusually high rates of motor neurone disease (MND) have been discovered in towns along Australia's Murray River, prompting research into potential environmental causes like blue-green algae blooms; the lack of a national MND database hinders comprehensive investigation, leading to calls for a $12 m...

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Delayed MND Diagnosis Leads to Deterioration and Family Hardship

A 63-year-old Grimsby man, Tony McCue, received a delayed diagnosis of motor neurone disease (MND) after experiencing symptoms since mid-2023, highlighting concerns about NHS care and leading to significant physical decline and financial strain on his family.

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theguardian.com
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Daniher Named 2025 Australian of the Year for MND Advocacy

Neale Daniher, a 63-year-old former AFL player and coach, was named 2025 Australian of the Year on Saturday for his work raising over $115 million for MND research through his FightMND charity since his 2013 diagnosis.

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Showing 1 to 12 of 17 results