Tag #Patient Advocacy

Showing 1 to 12 of 24 results

edition.cnn.com
🌐 85% Global Worthiness
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College Students and Healthcare: A Guide to Adulting

Dr. Jill Grimes offers advice for college students on managing their healthcare, emphasizing preparation, clear communication with doctors, and proactive follow-up.

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40% Bias Score

Good Health and Well-being
nos.nl
🌐 85% Global Worthiness
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Dutch Government Appoints Ambassador for Q-Fever Victims After Years of Neglect

Following three critical reports by the National Ombudsman detailing the Dutch government's neglect of Q-fever patients, the Ministry of Health appointed an ambassador to represent their interests, addressing thousands of cases of chronic fatigue syndrome resulting from the 2007-2010 epidemic.

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48% Bias Score

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bbc.com
🌐 75% Global Worthiness
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Rare Disease Misdiagnosis Leads to Organ Failure, PTSD

Charlotte Chapman-Hart, a 32-year-old from Nottinghamshire with rare diseases Chiari malformation type 1 and syringomyelia, suffered severe weight loss and organ failure due to a medication side effect, was misdiagnosed with an eating disorder, and experienced inadequate hospital care, leading to PT...

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40% Bias Score

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dailymail.co.uk
🌐 85% Global Worthiness
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Neurologist's Misdiagnosis Leads to PEI Specialization

Seattle neurologist Ilene Sue Ruhoy's delayed brain tumor diagnosis, due to dismissed symptoms, led her to specialize in complex post-exposure illnesses (PEIs), advocating for comprehensive testing and patient-centered care after her own struggles with misdiagnosis and treatment delays.

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36% Bias Score

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africa.chinadaily.com.cn
🌐 75% Global Worthiness
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Beijing Art Exhibit Raises Awareness of Rare Joint Disorder

An art exhibition in Beijing's Xuannan Bookstore from July 4-6 raised awareness of tenosynovial giant cell tumor, a rare joint disorder affecting 60,000 people annually in China, through artwork created collaboratively by patients, families, medical professionals, and artists, organized by the China...

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24% Bias Score

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mk.ru
🌐 75% Global Worthiness
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Death of Russian Woman Highlights Healthcare System Failures

Tatiana Drozdova, a 23-year-old Russian woman with ADA-TKIN, died after a protracted legal battle to secure a 50 million ruble drug that was not delivered in time, highlighting systemic failures in healthcare access.

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56% Bias Score

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nos.nl
🌐 85% Global Worthiness
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Netherlands Appoints Ambassador for Q-Fever Victims After Years of Neglect

Following three critical reports by the National Ombudsman detailing the Dutch government's negligence towards Q-fever patients, the Ministry of Health appointed an ambassador to represent their interests, aiming to address the widespread suffering and lack of UWV (Employee Insurance Agency) recogni...

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52% Bias Score

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theguardian.com
🌐 75% Global Worthiness
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NSW Health's Social Media Policy Draft Sparks Concerns Over Healthcare Worker Speech

A draft social media policy by NSW Health in Australia is sparking controversy, with doctors' unions claiming it will restrict healthcare workers from speaking out about patient care issues, while NSW Health says it's updating existing guidance. The policy includes internal communication tools and r...

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60% Bias Score

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smh.com.au
🌐 85% Global Worthiness
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NSW Hospitals to Ask Parents About Children's Worsening Conditions

Nine-year-old Caleb East's pneumonia diagnosis was delayed due to initial dismissal of his mother's concerns by his GP and hospital staff. Now, NSW hospitals will ask parents if they're worried about their child's worsening condition, a response to research showing parental concern better predicts c...

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48% Bias Score

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theguardian.com
🌐 85% Global Worthiness
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Parents' Grief Fuels Mitochondrial Disease Research Breakthrough

Lily, diagnosed with mitochondrial disease, died at six months old, prompting her parents to establish The Lily Foundation, which has raised over £11 million and developed a routine gene test for the disease.

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20% Bias Score

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elpais.com
🌐 75% Global Worthiness
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Spain Officially Recognizes Long COVID, Other Conditions as Chronic Illnesses

The Spanish Ministry of Health and autonomous communities agreed to classify long COVID, celiac disease, chronic non-cancer pain, and post-polio syndrome as chronic illnesses, mandating specific healthcare pathways and protocols for improved patient care and resource access.

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32% Bias Score

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pda.rostov.kp.ru
🌐 75% Global Worthiness
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Cancer Treatment Challenges for Patient with Pre-existing Heart Condition

Yulia Novikova, a Rostov resident with a history of six heart surgeries, battled breast cancer while prioritizing her daughter's well-being, highlighting the need for specialized cardio-oncology care.

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24% Bias Score

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Showing 1 to 12 of 24 results