Tag #Patient Advocacy

Showing 13 to 24 of 24 results

kathimerini.gr
🌐 75% Global Worthiness
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US Healthcare: Professional Help for Managing Health Conditions

In the US, managing health conditions often requires professional help, ranging from home care assistance to specialized geriatric care managers and patient advocates who help with complex healthcare needs and costs, offering services tailored to individual requirements.

Progress

20% Bias Score

Good Health and Well-being
dailymail.co.uk
🌐 85% Global Worthiness
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NHS Endometriosis Delays Lead to Mother's Suicide

Nicola Thyne, a 35-year-old mother of two from Bathgate, Scotland, died by suicide after a 15-month delay for endometriosis surgery within the NHS, highlighting the significant issue of delayed diagnosis and treatment for endometriosis sufferers in the UK.

Progress

44% Bias Score

Good Health and Well-being
sante.lefigaro.fr
🌐 85% Global Worthiness
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Advocate Highlights Systemic Issues in Rare Disease Diagnosis

Following her daughter's death from a rare liver disease due to delayed diagnosis, Hélène Berrué-Gaillard advocates for earlier diagnosis and improved care for rare diseases, leading to changes in child health records and pediatric consultation schedules, and highlighting persistent systemic challen...

Progress

44% Bias Score

Good Health and Well-being
mk.ru
🌐 85% Global Worthiness
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Progress and Challenges in SMA Treatment in Russia

A February 19th press conference in Moscow discussed Russia's progress in SMA diagnosis and treatment, revealing 1,511 registered patients (1,004 children, 507 adults), over 95% newborn screening coverage in 2023, and the availability of three treatments including a domestic generic.

Progress

56% Bias Score

Good Health and Well-being
dailymail.co.uk
🌐 85% Global Worthiness
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Delayed Cancer Diagnosis After GP Removes Patient Over Painkiller Requests

After two years of stomach pain, 28-year-old Stephanie Thomas was removed from her GP's patient list due to repeated requests for painkillers, only to be later diagnosed with incurable stage four cancer; her case highlights potential systemic failures in healthcare.

Progress

44% Bias Score

Good Health and Well-being
milano.repubblica.it
🌐 85% Global Worthiness
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Long Covid Sufferer Faces Systemic Healthcare Barriers

Colombian Erika, a long Covid sufferer with 85% disability, faces challenges accessing adequate healthcare and financial support due to bureaucratic hurdles, delayed employer reporting, and inadequate union representation, highlighting systemic issues within healthcare and worker protection.

Progress

56% Bias Score

dailymail.co.uk
🌐 75% Global Worthiness
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Woman Ends Cancer Treatment After Nine Years, Advocates for Earlier Screenings

A 55-year-old California woman, Jamie Comer, is ending treatment after a nine-year battle with stage four colon cancer, advocating for earlier cancer screenings after her diagnosis at 47, when the recommended screening age was 50, now lowered to 45.

Progress

36% Bias Score

Good Health and Well-being
dailymail.co.uk
🌐 85% Global Worthiness
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Missed Placental Abruption Leads to Baby's Death at Hinchingbrooke Hospital

In December 2020, Katalin Szabo's son Dexter died at 27 weeks gestation at Hinchingbrooke Hospital due to a missed placental abruption; staff dismissed her symptoms, and the couple received a £20,000 settlement.

Progress

48% Bias Score

Good Health and Well-being
cbsnews.com
🌐 35% Global Worthiness
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Postpartum Heart Failure Leads to Successful Transplant

Kristin King, a Washington D.C. resident, received a heart transplant in September 2023 after developing peripartum cardiomyopathy four months postpartum, highlighting the rare and aggressive nature of this condition and the importance of seeking medical attention for unusual symptoms after childbir...

Progress

4% Bias Score

bbc.com
🌐 85% Global Worthiness
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Young-Onset Dementia: Advocacy for Earlier Diagnosis and Improved Support

Peter Alexander, 56, received a Frontotemporal dementia diagnosis at 49, prompting him to create the film "Hear Our Voice" to challenge stereotypes and advocate for earlier diagnosis and improved support for those with young-onset dementia, a condition affecting over 70,000 people in the UK.

Progress

24% Bias Score

Good Health and Well-being
nos.nl
🌐 75% Global Worthiness
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Dutch Parliament Rejects Funding for Long COVID Research

A proposed €21 million research budget for long COVID symptom treatment in the Netherlands is facing defeat in parliament, delaying large-scale treatment for nearly half a million patients due to budgetary constraints and competing priorities within the government.

Progress

48% Bias Score

Good Health and Well-being
sante.lefigaro.fr
🌐 % Global Worthiness
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French Health Authority Rejects Early Access to Biogen's ALS Drug

The French health authority denied early access to Biogen's ALS drug Qalsody due to insufficient clinical trial data, sparking controversy and raising questions about its potential effectiveness.

Progress

0% Bias Score

Showing 13 to 24 of 24 results