Tag #Rare Disease

Showing 37 to 41 of 41 results

bbc.com

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Dec 10, 16:13

Teenage Photographer Dies, Family Launches Charity for Rare Cancer

Seventeen-year-old Liz Hatton, a talented photographer from Harrogate, UK, passed away on November 27th after battling desmoplastic small round cell tumor; her family now aims to establish a charity to fund research and support others facing this rare cancer.

Teenage Photographer Dies, Family Launches Charity for Rare Cancer

Seventeen-year-old Liz Hatton, a talented photographer from Harrogate, UK, passed away on November 27th after battling desmoplastic small round cell tumor; her family now aims to establish a charity to fund research and support others facing this rare cancer.

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What are the immediate impacts of Liz Hatton's death and her family's response?

Liz Hatton, a 17-year-old photographer from Harrogate, UK, died on November 27th from desmoplastic small round cell tumor (DSRCT). Her photography work, even while battling cancer, gained recognition, including an invitation to photograph Prince William. Her family plans to continue her mission of raising awareness and funds for DSRCT research, given the lack of specific funding for this rare cancer in the UK.

sante.lefigaro.fr

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Dec 2, 23:37

Récidive de cancer résistante pour Emilie Dequenne

L'actrice Emilie Dequenne, atteinte d'un corticosurrénalome, un cancer rare des surrénales, annonce une récidive résistante au traitement, interrompant sa carrière malgré une prise en charge spécialisée dans un centre labellisé.

Récidive de cancer résistante pour Emilie Dequenne

L'actrice Emilie Dequenne, atteinte d'un corticosurrénalome, un cancer rare des surrénales, annonce une récidive résistante au traitement, interrompant sa carrière malgré une prise en charge spécialisée dans un centre labellisé.

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Quel est l'impact de la résistance au traitement du corticosurrénalome sur la carrière et la santé d'Emilie Dequenne ?

En octobre 2023, l'actrice Emilie Dequenne a annoncé être atteinte d'un corticosurrénalome, un cancer rare des glandes surrénales. Malgré une rémission initiale, une récidive plus agressive a nécessité la suspension de sa carrière et un traitement de chimiothérapie intensifié. Le cancer est résistant à une partie du traitement.

t24.com.tr

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Nov 13, 16:11

Woman Diagnosed with Sexsomnia

A 50-year-old woman is diagnosed with sexsomnia, a rare sleep disorder causing her to engage in sexual activity while asleep. She takes precautions when away from home and has an understanding with her husband regarding the condition.

Woman Diagnosed with Sexsomnia

A 50-year-old woman is diagnosed with sexsomnia, a rare sleep disorder causing her to engage in sexual activity while asleep. She takes precautions when away from home and has an understanding with her husband regarding the condition.

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What is sexsomnia and how does it affect Lauren Spencer?

Lauren Spencer, a 50-year-old woman, was diagnosed with sexsomnia, a rare sleep disorder that causes her to engage in sexual activity while asleep. She experiences episodes where she initiates sex with her husband, Charlie, but has no memory of the events.

pda.nsk.kp.ru

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Dec 2, 17:26

Novosibirsk Teen with Progeria Faces Treatment Hurdles Despite Social Media Success

Fifteen-year-old Anya Korchagina from Novosibirsk battles progeria, a rare disease causing premature aging, and faces challenges accessing experimental treatment in Russia after a femur fracture, yet maintains a positive outlook through her popular social media blog.

Novosibirsk Teen with Progeria Faces Treatment Hurdles Despite Social Media Success

Fifteen-year-old Anya Korchagina from Novosibirsk battles progeria, a rare disease causing premature aging, and faces challenges accessing experimental treatment in Russia after a femur fracture, yet maintains a positive outlook through her popular social media blog.

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How has Anya Korchagina used social media to cope with her health challenges and connect with others, and what is the impact of her online presence?

Anya's story highlights the difficulties faced by individuals with rare diseases in accessing appropriate medical care and treatment. The lack of access to experimental medication in Russia, coupled with the reluctance of medical professionals to treat Anya due to her condition, resulted in significant delays in her treatment and further health complications. The positive impact of social media on Anya's emotional wellbeing is also evident.

lexpress.fr

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Nov 13, 16:05

Gene Therapy Breakthrough for Duchenne Muscular Dystrophy

A gene therapy developed by Généthon shows remarkable success in treating Duchenne muscular dystrophy in a young boy, offering hope for future treatments. Further research is underway.

Gene Therapy Breakthrough for Duchenne Muscular Dystrophy

A gene therapy developed by Généthon shows remarkable success in treating Duchenne muscular dystrophy in a young boy, offering hope for future treatments. Further research is underway.

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What was the significant medical breakthrough involving Sacha?

Sacha, a young boy with Duchenne muscular dystrophy, was the first child in France to receive a gene therapy treatment developed by Genethon. Two years later, his condition is nearly invisible, marking a major breakthrough.

Showing 37 to 41 of 41 results